This week, we gained important new ground in our work to advance the development of new cystic fibrosis treatments. VX-809, a potential CF drug developed by Vertex Pharmaceuticals, showed encouraging results in a preliminary Phase 2a clinical trial.
VX-809 is one of the first investigational drugs aimed at treating the underlying causes of CF.The oral therapy was tested in patient volunteers who have the most common cystic fibrosis mutation, Delta F508.Results from the trial showed VX-809 was well-tolerated and, in a subset of CF patients, reduced sweat chloride levels — a key indicator of CF.
VX-809 is the direct result of one of the Foundation’s largest investments in drug development. This gives us confidence that our innovative approach to science leads to progress.
We ALL know money buys science and science buys HOPE!!!!
Thanks Somer for his great info!!
February 5, 2010
PINK..OH MY!!
Not much has been going on here in my world! Although it has warmed up enough to wash my car.. Yea it look brand new again.. That's what I don't like about living in the snow, the road salt is so hard on cars.. But that's why we have car washes I guess..
So I have decided to change up my look a bit.. Yup I went back to my blonde.. Very blonde I must say.. But I love it!! I had many friends tell me that it would look pretty sweet if I added a couple of streaks of wild color.. Well I took their advise and put in Pink and Blue.. LOL.. When my CF benefit rolls around I think I'm going to put in purple and green!! Purple for CF and green for transplant!! What ya think?? To night I am going to go down to SL and see some friends that I have not seen in a long time! We are all going to the moon.. They are putting on a fundraiser for the mom of the owner of the bar.. This last Christmas she had to get emergency surgery.. She is doing fine now.. Thank goodness!!
I have almost finished the 2nd season of Dexter!! Yes I know I'm kinda behind times.. LOL If you like crime shows I highly recommend watching Dexter.. I wont ruin it in case you have not seen it before and want to watch it.. But dang I am ADDICTED!!
What do you think??
I have decided to change up Ziggy's life a little.. LOL I gave him a mo-hawk.. he he he just like his momma.. He is so damn cute.. I just love my kids!! He pushed the covers and blankets on my bed to make his own bed in my bed.. Good thing I always give him baths!!!
So I have decided to change up my look a bit.. Yup I went back to my blonde.. Very blonde I must say.. But I love it!! I had many friends tell me that it would look pretty sweet if I added a couple of streaks of wild color.. Well I took their advise and put in Pink and Blue.. LOL.. When my CF benefit rolls around I think I'm going to put in purple and green!! Purple for CF and green for transplant!! What ya think?? To night I am going to go down to SL and see some friends that I have not seen in a long time! We are all going to the moon.. They are putting on a fundraiser for the mom of the owner of the bar.. This last Christmas she had to get emergency surgery.. She is doing fine now.. Thank goodness!!
I have almost finished the 2nd season of Dexter!! Yes I know I'm kinda behind times.. LOL If you like crime shows I highly recommend watching Dexter.. I wont ruin it in case you have not seen it before and want to watch it.. But dang I am ADDICTED!!
What do you think??
I have decided to change up Ziggy's life a little.. LOL I gave him a mo-hawk.. he he he just like his momma.. He is so damn cute.. I just love my kids!! He pushed the covers and blankets on my bed to make his own bed in my bed.. Good thing I always give him baths!!!
January 16, 2010
Snowboarding
I have spent the end of the week in Salt Lake visiting my friends.. It was mostly a chill kind of week.. Amanda Ron and little man Brenden wanted to go to dinner at the Porcupine.. We had a very good dinner.. We were able to catch up on allot.. I have not seen them in a long tome.. In fact it has been a year since I have seen Ron and Brenden.. The last time I saw Amanda was last march.. Brenden is getting so big he is almost 2.. He is such a happy boy I just love him to pieces.. When we got done with dinner Amanda gave me a ride to my car.. The parking there sucks.. Anyway we had just got on I 215 and Amanda was right in front of me.. I noticed she veered to the left and so I went to the left a little.. Well all of the sudden she went way far to the left into the on coming lane.. I was like "holy hell" and the next thing I knew my car had hit something and the noise was so loud I just know my car was gonna be in sad shape.. Well Amanda called me up and asked if I had made it through that mess of stuff.. I told her No that I was pulled over with something stuck under my car.. I was pretty sure it was a snowboard that got jammed under there but not 100% sure.. By this time there was no one else driving down the freeway.. So I got out and looked and sure enough it was a snowboard that was jammed under there some way or another.. So the dude that was driving the car that the snowboard was attached to came over and pulled his board out from under my car.. I guess somehow the rack came off his car and everything had flown off.. The rack was in many pieces.. A big truck was in front of Amanda and ran over it all.. I looked at the dudes board and it was beyond repair.. There was a part that was under the tire and when I went to stop it took about 150 yard before I could completely stop well the board had a hole in it all the way through.. Luckily my car had no damage to it.. It's a good thing cause I would have been so mad.. Not that it was the kid doing anything on purpose but still If it was me I would have made sure things were tight and not a bit loose.. That could have been very bad..
As far as things go with Tiffai I still have not talked to her, and I am okay with it now..
It was hard but there were things that was said to my best friend that was so uncalled for.. Im not going to be in anything that drags other people who does not have anything to do with anything.. Who ever tries to split up Sarah and I are crazy.. We are Cysta's for life forever and always!!
As far as things go with Tiffai I still have not talked to her, and I am okay with it now..
It was hard but there were things that was said to my best friend that was so uncalled for.. Im not going to be in anything that drags other people who does not have anything to do with anything.. Who ever tries to split up Sarah and I are crazy.. We are Cysta's for life forever and always!!
January 8, 2010
Catching Up
Wow so yes it has been over a month since I have talked about anything.. I hope everyone had a great Holiday Season! I had a good one.. My family came up for Christmas and spent a week with us.. It was fun we went snowmobiling.. Even though the snow sucked cause there was no base so we had to stay on the trail.. Even on the trail we got stuck a couple times.. It was still fun though.. We had a fun new years too.. My friends Shannon, Lacie, Callie, and Joan the one I call my mom went to the UFC fights in Pocatello.. We have a friend Caral Sims that fights.. It was his last fight ever so we had to go watch..
So I'm not sure how familiar you are with being around someone that is Bi polar.. I have never had to deal with it myself although I have seen 2 of my best friends marry someone with Bi Polar.. It was very hard to watch them go through something so difficult that they had no control over.. I always have said that I am not going to get involved with that.. They both were with physically violent ones.. It truly scared that crap out of me.. Well I guess you cant help who you fall in love with, cause I did and they have Bi polar.. It was fine at first and then it's like everything can turn over in a second.. I never seen the physical part of it but I sure did see the mental part.. That is just as hard in some ways I think.. After the fights were all said and done they really don't remember what they said and how they acted while saying it.. It's a freaky feeling.. It was a pattern every single day.. In the morning it would be great and then by night we would be so mad at each other that we were done with it all.. Then come morning again and we were trying to make things work from a new start.. That did not work even a little bit.. So I had to do what was best for myself and protect my heart.. We have not talked since 4 days before Christmas.. That part about killed me cause family is so important to me.. I just want to call and say hi.. But I know if I do then it will start all over again... The first and second and third time were hard enough.. Each time would be just as hard as the first it never lightens up.. You think it would after going through all of that day after day.. It came down to at the end that no matter what I did it was never enough.. It takes 2 people to make a relationship work.. They can not be one sided in any way.. I though me and Jakes were shaky toward the end.. But this was 10 times the roller coaster.. Jake and I started dating 7 years ago with breaks here and there and NEVER had fights like this..
So I am going to end this on a good note.... I had clinic Monday and I blew an 85.. The best yet EVER!!! This year is going to be the best yet!!
So I'm not sure how familiar you are with being around someone that is Bi polar.. I have never had to deal with it myself although I have seen 2 of my best friends marry someone with Bi Polar.. It was very hard to watch them go through something so difficult that they had no control over.. I always have said that I am not going to get involved with that.. They both were with physically violent ones.. It truly scared that crap out of me.. Well I guess you cant help who you fall in love with, cause I did and they have Bi polar.. It was fine at first and then it's like everything can turn over in a second.. I never seen the physical part of it but I sure did see the mental part.. That is just as hard in some ways I think.. After the fights were all said and done they really don't remember what they said and how they acted while saying it.. It's a freaky feeling.. It was a pattern every single day.. In the morning it would be great and then by night we would be so mad at each other that we were done with it all.. Then come morning again and we were trying to make things work from a new start.. That did not work even a little bit.. So I had to do what was best for myself and protect my heart.. We have not talked since 4 days before Christmas.. That part about killed me cause family is so important to me.. I just want to call and say hi.. But I know if I do then it will start all over again... The first and second and third time were hard enough.. Each time would be just as hard as the first it never lightens up.. You think it would after going through all of that day after day.. It came down to at the end that no matter what I did it was never enough.. It takes 2 people to make a relationship work.. They can not be one sided in any way.. I though me and Jakes were shaky toward the end.. But this was 10 times the roller coaster.. Jake and I started dating 7 years ago with breaks here and there and NEVER had fights like this..
So I am going to end this on a good note.... I had clinic Monday and I blew an 85.. The best yet EVER!!! This year is going to be the best yet!!
November 29, 2009
Thankful
This dog was born on Christmas Eve in the year 2002. He was born with 2 legs -
He of course could not walk when he was born. Even his mother did not want him.
His first owner also did not think that he could survive and he was thinking of 'putting him to sleep'. But then, his present owner, Jude Stringfellow, met him and wanted to take care of him. She became determined to teach and train this little dog to walk by himself.. She named him 'Faith'.
In the beginning, she put Faith on a surfboard to let him feel the movement. Later she used peanut butter on a spoon as a lure and reward for him for standing up and jumping around. Even the other dog at home encouraged him to walk. Amazingly, only after 6 months, like a miracle, Faith learned to balance on his hind legs and to jump to move forward. After further training in the snow, he could now walk like a human being.
Faith loves to walk around now. No matter where he goes, he attracts people to him. He is fast becoming famous on the international scene and has appeared on various newspapers and TV shows. There is now a book entitled 'With a Little Faith' being published about him. He was even considered to appear in one of Harry Potter movies.
His present owner Jude Stringfellew has given up her teaching post and plans to take him around the world to preach that even without a perfect body, one can have a perfect soul'.
In life there are always undesirable things, so in order to feel better
you just need to look at life from another direction.
I hope this message will bring fresh new ways of thinking to everyone
and that everyone will appreciate and be thankful for each beautiful day.
Faith is the continual demonstration of the strength and wonder of life.
His first owner also did not think that he could survive and he was thinking of 'putting him to sleep'. But then, his present owner, Jude Stringfellow, met him and wanted to take care of him. She became determined to teach and train this little dog to walk by himself.. She named him 'Faith'.
In the beginning, she put Faith on a surfboard to let him feel the movement. Later she used peanut butter on a spoon as a lure and reward for him for standing up and jumping around. Even the other dog at home encouraged him to walk. Amazingly, only after 6 months, like a miracle, Faith learned to balance on his hind legs and to jump to move forward. After further training in the snow, he could now walk like a human being.
Faith loves to walk around now. No matter where he goes, he attracts people to him. He is fast becoming famous on the international scene and has appeared on various newspapers and TV shows. There is now a book entitled 'With a Little Faith' being published about him. He was even considered to appear in one of Harry Potter movies.
His present owner Jude Stringfellew has given up her teaching post and plans to take him around the world to preach that even without a perfect body, one can have a perfect soul'.
In life there are always undesirable things, so in order to feel better
you just need to look at life from another direction.
I hope this message will bring fresh new ways of thinking to everyone
and that everyone will appreciate and be thankful for each beautiful day.
Faith is the continual demonstration of the strength and wonder of life.
November 15, 2009
White!!
Today we decided to go to Flaming Gorge.. We were driving thought the canyon and to our surprise we came across 2 Moose.. They are so graceful I just love to watch them.. One was a younger moose and the other was a huge bull moose.. Tiffani's camera did not want to take any pictures cause the battery's were dead.. So I had to take them with my phone.. So they are not the best but at least you can see them!!..
Yellow
I ran across the pics that me and Tiffani took a few weeks ago.. The colors were so bright that it hurt the eye to look directly at.. It was beautiful though.. We had alot of fun.. Did yo know that there are these one kind of trees called Yellow Pine that smell like vanilla.. Yes they really do.. It's so cool!!
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