I have been out of the hospital for a week now... I still fell alright. I started a study on Monday with a nebulized inhaler.. Its called aztreonam.. It is something that I will nebulize 3 times a day and it takes 2-3 min to fully nebulize.. It has its own nebulizing machine called an e-flow.. So far I really like everything about it.. I hope that it will keep me out of the hospital longer..
We were able to make it to the dog park today for a little bit.. It was nice to get out somewhere besides the hospital.. Ziggy is happy now too..
Next weekend is my Cystic fibrosis Fundraiser.. My great friend Mandy and her Sister Megan is putting on Barrel Racing Jackpot.. All the proceeds go directly to the CF foundation in hopes that they will find a cure.. We will present the money at Taste of Salt Lake.. Which is a silent action to raise money for CF.. I know we will do real good.. I cant wait to post the results of this event..
August 30, 2008
August 28, 2008
First Call @ 4:55
It has almost been a month since I have wrote anything in this here blog.. A month already, wow.. Time flies, yet at the same time it is just creeping along.. It creeps only for the fact I think everyday that my life will start a new golden road.. I cant help but think of that day every time I get up to do anything and I have to focus everything on getting my next breath of air in.. So basically I am never not thinking of this day unless I am sleeping..
Well I was taking a nap today after rehab, I really was worn out today.. Unlike yesterday where I felt real good.. Good enough to clean my room and sit out with the dogs and play with them for the whole afternoon.. I just wish more days could be good more then the ones I struggle with.. I guess that's what make this whole journey so special, you truly are ready for that call to come in.. Well as I was saying I was taking my nap and my phone rang.. I was so tired I almost let it go to my voice mail.. But at the last second I picked it up to see Taunia's name on the ID.. So it just crossed my mind she was just making sure I was still doing good for the simple fact that it is a busy holiday for accidents.. So I was expecting her to just be doing a routine check up to make sure I was feeling good in case we were to get some lungs in the future..
I was right to a sense.. but the twist was she REALLY had LUNGS and that was my possible Donner. We Talked for a few min as she was asking me questions mainly about how i was feeling health wise.. And too see if I was taking any antibiotics.. So she asked when was the last time I had ate or drank anything, well my answerer was no not since 11.. So that was good and just to continue not to drink or eat. Until further notice which would be in 2 hours..
So I called everyone in my family and my few close friends to give them a heads up that this could be the night of new lungs..
So I waited by my phone for the longest 2 hours ever.. Well She ended up calling in hour and half telling me they were not good.. I feel sad for her having to have to call people and get them prepped for a possible new life, only to get a call back saying NO GO..
It has been 9 years on Labor day since my grandfather passed away so maybe he will send some down on that day..
Every emotion I had came out today.. I'm not quiting cause I know they will come..
Well I was taking a nap today after rehab, I really was worn out today.. Unlike yesterday where I felt real good.. Good enough to clean my room and sit out with the dogs and play with them for the whole afternoon.. I just wish more days could be good more then the ones I struggle with.. I guess that's what make this whole journey so special, you truly are ready for that call to come in.. Well as I was saying I was taking my nap and my phone rang.. I was so tired I almost let it go to my voice mail.. But at the last second I picked it up to see Taunia's name on the ID.. So it just crossed my mind she was just making sure I was still doing good for the simple fact that it is a busy holiday for accidents.. So I was expecting her to just be doing a routine check up to make sure I was feeling good in case we were to get some lungs in the future..
I was right to a sense.. but the twist was she REALLY had LUNGS and that was my possible Donner. We Talked for a few min as she was asking me questions mainly about how i was feeling health wise.. And too see if I was taking any antibiotics.. So she asked when was the last time I had ate or drank anything, well my answerer was no not since 11.. So that was good and just to continue not to drink or eat. Until further notice which would be in 2 hours..
So I called everyone in my family and my few close friends to give them a heads up that this could be the night of new lungs..
So I waited by my phone for the longest 2 hours ever.. Well She ended up calling in hour and half telling me they were not good.. I feel sad for her having to have to call people and get them prepped for a possible new life, only to get a call back saying NO GO..
It has been 9 years on Labor day since my grandfather passed away so maybe he will send some down on that day..
Every emotion I had came out today.. I'm not quiting cause I know they will come..
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