Semi update..

So a few things have happened since the last time I wrote. My breathing has defiantly become a little more constricted. It is getting harder to catch my breath. This it's self will almost sends me into orbit. All I can do is close my eyes and go to my happy place till I have caught my breath that is even hard to do most of the time. Last Saturday I was having a really hard time catching my breath, more so than it has been lately. I went to E.R and they gave me 3 albutrol treatments back to back. Holy crap did that ever make me jittery. After that had a moment to set in and start working it had only improved my breathing a small amount so in result of that I was flown by air-med to Salt Lake. The air-med team was fantastic; I love those people with a great passion. They make every things feel like its all okay during the whole flight. Thank you my friends!! After I arrived at the U of U I already was getting more air than before. I had the o2 mask, witch at the time I loved. Cool air blowing on your face feels very refreshing when you can’t breathe well. I ended up only staying until Monday night. That was however enough time being spent in the MICU. I couldn’t even get out of my bed without assistance. That is the floor policy being ICU and all. I sure loved all the nurses though. I did get to see some of my RT's from 3 years ago from when I was CF sick. After all they are my family away from family!

Thanks Jake for almost being to the U before I was, speedy driver haha!! I needed someone there and you were there without me asking, you just somehow always know!

Tomorrow is Monday and I have clinic, so I will see what further actions we will take to try and make these lungs a bit happier or at least clam them down. I just want to thank everyone for their support and all their love I have been given to make it through these obstacles of life!

Gray..

Is the color it has been outside for a couple days now... We have snow in our mountains and I had to turn the heat on in the house... Not ready for the weather change, I am all about the sunshine year round!! Okay, ill take the snow on Christmas!! Who wouldn’t really!?

Well the only thing I have to update you with is about the culture that grew out from the lungs. It is one that is hard to treat and is resistant to most antibiotics. I am continuing with the one antibiotic that we started almost 2 weeks ago... Can’t really stop in mid treatment, even if it not helping with the new bug I have. It has a purpose some where in there... We tacked on another oral abx and not really sure that I feel that it is working... I do know that it makes everything taste like rusty metal... lol (Not that I would litterally know what that tasted like but it sounded like a good comparison to me!!) All that leads to finding foods not appealing in anyway. But I push through and eat anyway... I can NOT afford to loose anymore weight...
My picc line is working like a champ... Been running in meds constant for almost 2 weeks now with no problems! I still miss my Port though not going to lie about that. I go back to clinic Monday. I hope they have a good abx combo for the new bug...
That about wraps it all up on what has happened this last week... As for right now I think I am going to crawl in bed and hopefully wake up to sunshine tomorrow!!