5 months Later

First off I want to apologize for the severe delay in my blogging upkeep.. I was trying to enjoy the rest of the summer I guess and just simply got out of the habit of my blog. ALOT has happend since I have last posted. Not the best news either, but I have kept a positive attitude through it all.. Of coarse everyone has there days where you just want to do nothing but relax at home, so on those days that is exactly what I do.. I will break up all the info into a few posts, so you don't have so much thrown at you all in the same read..

So Late April early May I was diagnosed with Chronic Rejection. Which is basically the lungs going through long-term (permanent) rejection that is not reversible.

One month before rejection hit I was blowing (Pulmonary Function Test) in the high 80's.. Suddenly after I dropped to 35%.. HUGE drop and the adjustment for me to get thrown back that far was tough in so many ways, that words can not explain. Don't let me forget to mention I had pneumonia at the same time. It just added that much more toughness to the whole situation.

I was treated with 3 weeks of I.V treatment to get rid of the pneumonia. That did help me get some air a little easier, thank goodness!! With all this going on at once it was strange to me that my oxygen level was running pretty good still. I think I was still reading in at 96% O2 on room air. My weight was still good as well. I think I only lost 1 lb is all..

After the 3 week treatment and the pneumonia clear I thought I was on the mend to higher PFT numbers.. I have maintained the same this whole time, I have been blowing between 32 to 38 or close to.. It is hard to keep track now since I was blowing every week for a long while. Believe me its easy to loose count.

Over all I had a nice recovery from it all. Keeping stable is the most important part of chronic rejection. That I have managed to do with the help of new anti-rejection medication.

In July I caught pneumonia once again.. The same treatment took place as the first time I had it, so I will not repeat myself and bore you to much..

Huh Perhaps I can get all this in one post.. Good for me then I can start fresh next entry..

As of yesterday Monday September 26, I have pneumonia again. I feel this time has been the worse spell I have had yet out of the other 2 I mentioned above.. My PFT's were 25 this time. Lowest I have been yet, so I will work on getting back to the 30's. I am alot more junky in the lungs. It sounds like I have CF again. I have to say I sure feel like it too. I am now on oxygen all the time to help keep my lips from turning blue. They did that before transplant.
Anyway I also had another Picc line placed for 21 days of antibiotics. This time I got the continuous pump, so I will be getting infusion for the full 3 weeks pretty much non-stop.. I am completely fine with it cause I think I may get better results with a antibiotic running constant for the 3 weeks!! I am also on oral Cipro. So I will be kicking this in the butt when this is all over.

My arm is so sore right now where they placed the Picc (i.v) They had trouble threading it past the bend in my arm and ended up pushing it up in my neck. That part did not hurt I actually did not even feel it, but I could hear it.. Very weird.. so the part that hurts is at the site where it goes into my are. It is all bruised from them digging at it to try and make it turn the corner. It will be better in the next day or so.
I keep loosing weight, so I eat and eat and eat till there is no possible way I could eat another bit for the day.. UGG.. So that is something I am working very hard on as well..
The dogs know I am sick and they are very gentle and so sweet with me.. It's cute. I love those boys so much!! Well I think I have covered tho important stuff, if I have forgotten something I will add it to the next post. Oh I am still going to finish that 30 blog challenge, though I am giving it a new title.. 300 day challenge!! hehe

I do hope everyone gets a great start to the fall season!! I LOVE fall!!!