I came into to joint on Monday morning.. I really needed to come in this time.. The weekend was a tough one, but I made it through without going to the ER.. I will do anything to avoid that rout.. It is hell.. I got the last room.. Dang that was lucky.. Just in time.. No where in the hospital except 2E knows how to take care of CF.. This is our unit!!
My Grams came down today and will stay till Sunday.. It's nice to have some one here all the time.. Since that is the only time we can spend together.. I can go outside more now that I have someone to take me out.. Good thing the hospital is on the hill, cause it sits above all the real crappy air.. Maybe tomorrow we will go sit on the Huntsman Hospital where there is a garden on the top of the roof.. take a lunch or something.. yup that's what we are going to do..
My lungs still are filled with allot of junk so I cant get around to good without getting real real winded.. They are just doing the regular meds while I am in.. In a week I will be starting a new drug (Aztreonam) its in the phase 3 study.. So a bunch of my Cf family is already on it or getting on it soon.. They are all doing great.. So hopefully this can make me live more comfortably while I wait for my lungs.. I am a few weeks of being at 7 months..
Have a great day to all who read this!!
****Prayers go out to the super hero Will****
July 30, 2008
July 26, 2008
40 Great Things!!!
1. Take a 10-30 minute walk every day. And while you walk, Smile. It is the ultimate anti-depressant.
2. Sit in silence for at least 10 minutes each day. Buy a lock if you have to.
3. Buy a DVR and tape your late night shows and get more sleep.
4. When you wake up in the morning complete the following statement,
'My purpose is to __________ today.'
5. Live with the 3 E's -- Energy, Enthusiasm, and Empathy.
6. Play more games and read more books than you did in 2007.
7. Make time to practice Meditation or prayer. They provide us with daily fuel for our busy lives.
8. Spend time with people over the age of 70 and under the age of 6. - Appreciate their genuine nature, strength, and innocence. For real!
9. Dream more while you are awake.
10. Eat more foods that grow on trees and plants and eat less food that is manufactured in plants.
11. Drink green tea and plenty of water. Eat blueberries, wild Alaskan Salmon, broccoli, almonds & walnuts.
12. Try to make at least three people smile each day.
13. Clear clutter from your house, your car, your desk and let new and flowing energy into your life.
14. Don't waste your precious energy on gossip, issues of the past, negative thoughts or things you cannot control. Instead invest your energy in the positive present moment.
15. Realize that life is a school and you are here to learn. Problems are simply part of the curriculum that appear and fade away like algebra class but the lessons you learn will last a lifetime.
16. Eat breakfast like a king, lunch like a prince and dinner like a college kid.
17. Smile and laugh more. It will keep the energy vampires away.
18. Life isn't fair, but it's still good.
19. Life is too short to waste time hating anyone.
20. Don't take yourself so seriously. No one else does.
21. You don't have to win every argument. Agree to disagree.
22. Make peace with your past so it won't spoil the present.
23. Don't compare your life to others'. You have no idea what their journey is all about.
24. No one is in charge of your happiness except you.
25. Frame every so-called disaster with these words: 'In five years, will this matter?'
26. Forgive everyone for everything.
27. What other people think of you is none of your business.
28. Nature heals everything.
29. However good or bad a situation is it will change.
30. Your job won't take care of you when you are sick. Your friends will. Stay in touch
31. Get rid of anything that isn't useful, beautiful or joyful.
32. Envy is a waste of time. You already have all you need.
33. The best is yet to come.
34. No matter how you feel, get up, dress up and show up.
35. Do the right thing!
36. Call your family often. (Or email them to death!!!) Hey I'm thinking of ya!
37. Each night before you go to bed complete the following statements: I am thankful for __________.
Today I accomplished _________.
38. Remember that you are too blessed to be stressed.
39. Enjoy the ride. Remember this is not Disney World and you certainly don't want a fast pass. You only have one ride through life so make the most of it and enjoy the ride.
40. May your troubles be less, May your blessings be more, May nothing but Happiness come through your door!
2. Sit in silence for at least 10 minutes each day. Buy a lock if you have to.
3. Buy a DVR and tape your late night shows and get more sleep.
4. When you wake up in the morning complete the following statement,
'My purpose is to __________ today.'
5. Live with the 3 E's -- Energy, Enthusiasm, and Empathy.
6. Play more games and read more books than you did in 2007.
7. Make time to practice Meditation or prayer. They provide us with daily fuel for our busy lives.
8. Spend time with people over the age of 70 and under the age of 6. - Appreciate their genuine nature, strength, and innocence. For real!
9. Dream more while you are awake.
10. Eat more foods that grow on trees and plants and eat less food that is manufactured in plants.
11. Drink green tea and plenty of water. Eat blueberries, wild Alaskan Salmon, broccoli, almonds & walnuts.
12. Try to make at least three people smile each day.
13. Clear clutter from your house, your car, your desk and let new and flowing energy into your life.
14. Don't waste your precious energy on gossip, issues of the past, negative thoughts or things you cannot control. Instead invest your energy in the positive present moment.
15. Realize that life is a school and you are here to learn. Problems are simply part of the curriculum that appear and fade away like algebra class but the lessons you learn will last a lifetime.
16. Eat breakfast like a king, lunch like a prince and dinner like a college kid.
17. Smile and laugh more. It will keep the energy vampires away.
18. Life isn't fair, but it's still good.
19. Life is too short to waste time hating anyone.
20. Don't take yourself so seriously. No one else does.
21. You don't have to win every argument. Agree to disagree.
22. Make peace with your past so it won't spoil the present.
23. Don't compare your life to others'. You have no idea what their journey is all about.
24. No one is in charge of your happiness except you.
25. Frame every so-called disaster with these words: 'In five years, will this matter?'
26. Forgive everyone for everything.
27. What other people think of you is none of your business.
28. Nature heals everything.
29. However good or bad a situation is it will change.
30. Your job won't take care of you when you are sick. Your friends will. Stay in touch
31. Get rid of anything that isn't useful, beautiful or joyful.
32. Envy is a waste of time. You already have all you need.
33. The best is yet to come.
34. No matter how you feel, get up, dress up and show up.
35. Do the right thing!
36. Call your family often. (Or email them to death!!!) Hey I'm thinking of ya!
37. Each night before you go to bed complete the following statements: I am thankful for __________.
Today I accomplished _________.
38. Remember that you are too blessed to be stressed.
39. Enjoy the ride. Remember this is not Disney World and you certainly don't want a fast pass. You only have one ride through life so make the most of it and enjoy the ride.
40. May your troubles be less, May your blessings be more, May nothing but Happiness come through your door!
July 17, 2008
week half over
So the weather is cooling down a smidgen.. At least at night it is pleasant to be out.. Best of all we are back on Green air days.. Looks like it will be like that for the whole weekend.. That is nice than I can go out side and not be so worried of the affects is going to give me later that night.. I wish it would rain, it was real humid hear today.. I was going to send my car through the car wash but then i thought it just might rain.. So my car is still dirty with no rain.. I'm going to wash it tomorrow then it will rain, right??
I finally got my oxygen guy straightened out.. I don't know where they find these people to work for them but its like talking to a brick wall most of the time.. Then they just do what they want to anyway.. I really miss my O2 guy Jon in up home he would make sure everything was always in order.. Nope not here they come to fill your tanks when they feel the need to come, even though they know I am in the hospital for a couple of weeks.. they will come everyday and leave their " sorry we missed you" note.. Duh I'm not here don't you remember me telling you, plus I called the office as well.. I was down to my tank that goes in my car well since I am on 6 liters that tank would only last me 1 day tops with what was left in it.. So I called the office and she told me that they could only come out the next day.. UUMM did I mention my tank is on empty... So she sent someone out later last night.. ell he told me he could only fill one tank.. And he tried to take my little tank away from me.. Its not their tank to take in the first place.. He was making me so mad.. I finally said well someone better be coming out tomorrow (now today) or its gonna get ugly.. So Today my regular delivery guy came and topped all the tanks off.. And is coming back tomorrow to do the same so I can get back on the normal Thursday schedule.. People can make things so difficult sometimes..
Ending on a good note, Ziggy and I found a good dog park today to go to.. We were there for a couple of hours.. He made alot of friends.. His new bestie is the Bull Mastiff.. Of coarse the biggest dog there.. But they got along great and wrestled for awhile.. He came home all tuckered out.. He ate dinner had his treats and went to bed.. We are going to make this at least an every other day trip if I feel good enough to do it every day then we sure will..
Hope everyone has a great day/night whenever you read this..
I finally got my oxygen guy straightened out.. I don't know where they find these people to work for them but its like talking to a brick wall most of the time.. Then they just do what they want to anyway.. I really miss my O2 guy Jon in up home he would make sure everything was always in order.. Nope not here they come to fill your tanks when they feel the need to come, even though they know I am in the hospital for a couple of weeks.. they will come everyday and leave their " sorry we missed you" note.. Duh I'm not here don't you remember me telling you, plus I called the office as well.. I was down to my tank that goes in my car well since I am on 6 liters that tank would only last me 1 day tops with what was left in it.. So I called the office and she told me that they could only come out the next day.. UUMM did I mention my tank is on empty... So she sent someone out later last night.. ell he told me he could only fill one tank.. And he tried to take my little tank away from me.. Its not their tank to take in the first place.. He was making me so mad.. I finally said well someone better be coming out tomorrow (now today) or its gonna get ugly.. So Today my regular delivery guy came and topped all the tanks off.. And is coming back tomorrow to do the same so I can get back on the normal Thursday schedule.. People can make things so difficult sometimes..
Ending on a good note, Ziggy and I found a good dog park today to go to.. We were there for a couple of hours.. He made alot of friends.. His new bestie is the Bull Mastiff.. Of coarse the biggest dog there.. But they got along great and wrestled for awhile.. He came home all tuckered out.. He ate dinner had his treats and went to bed.. We are going to make this at least an every other day trip if I feel good enough to do it every day then we sure will..
Hope everyone has a great day/night whenever you read this..
July 13, 2008
Sunday
My Dad & I
My Grams & IToday has been a good day.. My Dad and Grams came down for the day.. We ate out on the grill and just hung out for the day.. Grams and I went to the store and got a few things.. My Dad had to fix some electric things on the house.. Got everything I needed to get done so the rest of the evening I will put all my stuff I got and lay in bed and watch some movies.. The air is still a little hazy so I still don't spend that much outside.. I stay in my room for the most part with my hepa filter on high.. It has to help a little, right??
Well I'm going to go get my things done so I can relax and catch up from the busy weekend.. I sure did ware me out...
Birthday!!!
Dang its been a bit since I have updated this.. So after 2 weeks in the hospital I just got home in time to spend my birthday with my family and friends out of the joint.. Last year I was in the joint so I was hoping this year would be a little different.. Glad it was!!.. Yesterday 7-11 (my actual b-day) my friends Ron, Amanda, and baby Brenden took me to dinner.. It was a good night..
Today we had a b-day celebration for myself and two of my friends that has a b-day this month as well.. We had a cook-out.. It was good!! I got this PINK computer bag.. Yeah now I can have something to carry my computer in instead if stuffing it in my suitcase.. Thanks Jackie!! Loves!! I got these really cool necklaces from my mom and sister, one is a symbol daughter and the other is a symbol for sister.. I got some really sweet summer clothes too.. I was glad about that cause ALL my summer clothes are missing form when I moved.. So I had no shorts, and now I do.. Good cause its hot..
My mom brought Ziggy down so he could stay with me again.. I'm not to sure how long I will be able to stay out this time.. I will do all I can to stay out, but we are having the crappy smoke from all The Cali fires.. It really raises hell with all of CF'ers and all with lung problems.. Stay inside friends...
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