Almost A New Year..

I hope everyone has had a great holiday season.. I sure have had a great one.. I am home and enjoying it to the max.. I had a great Christmas.. I spent it with my family and with the best boyfriend in the whole world.. Jake spent the day and most of the night with us.. We had one hell of a snow storm Christmas night.. There was no driving in our town.. Good thing for the tractor plowing out our cars n trucks the next day..

My babies loved there presents.. They actually opened them themselves.. They each got a bling bling collar and some cookies.. Daizy got some pink bling and Ziggy got blue bling.. lol..I also got a bling bling belt.. I love it.. I also got a new coat that is so cool.. Pink black with a lil white.. I will have to post some pics on here of all the cool things.. Jake got me a gorgeous diamond choker necklace.. Love love it..

We have been out on the snowmobiles every day since the storm.. Oh man i love them.. I really want to get me my own.. My parents have 4 of them so for now I just take there's.. It works for now.. My Family from New Mexico is here for the holidays.. They are here for a few more days..

Oh man Sunday night we had a dinner for my parents birthday and i was going to get ready for bed.. Well I put my phone in my back pocket and I went to the bathroom.. Yes my phone fell in the toilet.. I yelled at my brother to come and fish it out.. Don't worry it was clean water.. I had just heard that night if you put it in a bag a rice it will draw all the water out and it will work again.. So i decided to give it a try.. By the next morning I took it out of the bag and it was fried.. It would to turn on for nothing.. So we headed to Verizon the get a new phone.. On the way my aunt called and said she had got it to turn on.. So after all we didn't have to go get a new one.. Yeah!! So I cleaned it up real good and it is working like new..

3 Months

Today is my 3 month anniversary.. I came home with all good news.. My pft's are up to 63%.. That is so cool, I cant even stand it I'm so excited.. I have worked hard at keeping myself healthy and working out my lungs..My lower left lobe has opened up.. Dr.Cahill says they are damn happy lungs.. So that makes me super happy..
My Aunt Kerry and I went to the Cheesecake Factory for dinner.. Yummy!!! I ate every single kernel that was on my plate.. The waiter looked at me kinda funny, I don't think he thought I could eat that much.. lol I do get those looks alot when I go out to eat.. Of coarse we had to bring home some cheesecake.. It is so good.. Then we went to look at some lights around our neighborhood.. I was not that impressed with them this year.. Not very many places decorated this year.. Our next thing on the calendar is the transplant Christmas brunch Thursday.. Its up at the hospital.. I think that we will have a great time.. My bestie Sarah will be there.. Yeah!!! I love seeing her she is like a sister to me.. We consider each other family.. For real!! Poor girl, the other day she broke her ankle.. I'm glad she didn't break anything else.. ouch!!
Well I'm getting tired so I think ill get to bed.. I hope you all had a great weekend..
Love all
T

Let it snow!!!

The weekend is all but over and we got some snow finally.. A white winter is here and hopefully will stay a while, you know till Christmas.. I had a quit weekend.. I was supposed to make it up to Jake's family Christmas party but the snow stopped that right away.. I guess there is always next year.. I have clinic tomorrow and I'm asking them if it's okay that I drive.. I probably could have asked a while ago but having my own driver has been nice.. lol.. I'm getting bored of it though.. I'm also asking when I can go home for good.. It has been a year since I have lived at my house.. My babies miss me.. When I go visit for the day they both go wild and they are glued to my side.. I bought them both new BLING collars for Christmas.. They will look spiffy.. I cant wait for Christmas.. I will be able to play in the snow, it will be super fun..

I will let you know the news that I come home with from clinic.. So stay tuned.. It will be good news I know it..

Love all
T

I Have Been Tagged

So I was reading my friend Jackie's blog and come to find out she tagged me.. So here we go time for some fun..

4 FAVORITE TV SHOWS:
A. Reba
B. Gray's
C. CMT top 20 count down
D. Private Practice

4 FAVORITE RESTAURANTS:
A. Chilies
B. Red Robin, (love the fries)
C. Sushi
D. Applebees

4 THINGS THAT HAPPENED YESTERDAY:
A. Went to last day of Rehab
B. Wrapped Christmas presents
C. Watched Illusionist
D. Looked at Christmas lights

4 THINGS TO LOOK FORWARD TO:
A. Christmas
B. Family coming for a visit
C. New House
D. Moving Home

4 THINGS ON MY WISH LIST:
A. A new Horse
B. New Car
C. CF standing for Cure Found
D. Gas lower then 1.43

4 THINGS I LOVE ABOUT WINTER:
A. Crunchy Snow
B. Frosty Trees
C. Christmas Treats
D. Snow Angles

4 PEOPLE I TAG:
A. Somer
B. Natilie
C. Lisa
D. Will and Family

Party Pics

Here are some pictures of my party last Friday..
To the left: Me and Jackie

Below: Best Friend Sarah and I

Me, Heather and Coby

My Princess Amanda and Baby Brenden

Mandy and I about to play some pool

2E buddies Christine, Emily and I
Aunt Kerry and I

Aunt Candy, Mom and I

P*A*R*T*Y*

So I had my New Lungs Party this weekend.. It was fun!! I had a bunch of my friends come and celebrate the gift of a new life.. Prayers went out to the donor family who is having a very different look on the holiday season..
We had alot of food to eat up at the party and we played a lot of pool.. There were alot of pictures taken so as soon as I get them back I will post a few of them.. My best friend Sarah came who has had her new lungs for a year now.. She is having a year anniversary on Monday to celebrate.. She is having an Open House and she has asked me to post it so who ever wants to come celebrate with her is welcome.. So if you want to come email me and I will get you the info you need.. I know its only a day away.. daizy_711@yahoo.com

I am still doing very good.. I am now strong enough I can climb stairs again.. its cool I take stairs now all the time if they are there.. I'm like a workout junkie now.. lol I think its from not being able to do stuff like that and now I can, so I love doing it all.. I mean all!!

Thanksgiving weekend

Tomorrow is Thanksgiving.. I hope everyone is ready to eat lots and lots.. First off I want to congratulate Will.. He is totally off the vent and he plans on staying off.. This will be the best holiday season for him and his family.. Way to go Harbison's...

I am going to my moms house for thanksgiving.. We are going to have a blast.. I can actually play with everyone.. Yeah!! We put our tree up last night so when we come home it will be done already..

I got the results from my bronchoscopy today and everything is clean.. I don't have clinic until my 3 month anniversary.. Things are looking good!! YEAH!!!

Everyone have a safe Holiday weekend..

***2 Months***

Post 2 Months

My Sister & I After Banquet

Brook Showing Her New Buckles She Won

Today is my two months since my transplant and I am still kicking major butt.. I feel real good and I know my pft's are going to be in the 60"s.. That would be so so cool.. Somer says I will fly past 100%, wow wouldn't that be something.. Anything is possible..

Last Wednesday we went to a banquet dinner for my sister and her barrel racing club.. She won her first buckle and at the end of the awards they announced the most improved rider, well she won another buckle for that.. She was super exited and she was smiling from ear to ear.. We ate dutch oven for dinner.. SSOOO good.. I made Jake come too.. It was so good to see him again.. We got to go and see his mom too.. She was excited to see me, we just hung out for a little bit and then went to the dinner.. I have not had dutch oven since I moved to SL.. One year ago.. I cant believe I have lived here a year.. During the wait for my call it seemed so long and it was the longest wait I have ever had.. But now that I am done with the wait time is going by a little faster..

Its now Saturday and Cj is coming over for dinner.. I think she is taking me shopping.. We have not really hung out for a long time.. Too long.. It seems at the time of my transplant

everyone got sick.. So I have not been able to see many of my friends.. Its a good thing I saw Jake Wednesday cause he is sick today.. He had to leave work.. Oh my just talked to him and he almost got in a wreck today.. A big truck almost t-boned him.. That would be terrible.. I'm pretty sure I would come apart with out him right now..

So on Tuesday I have a broncoscopy to check for rejection.. I'm sure things are great.. And just in case i do have rejection I will do a 3 day coarse of IV steroids.. That most always does the trick and gets rid of the rejection.. I was having heartburn everyday and night so last Monday in clinic they put me on another drug for that and It has seems to be doing the trick.. I have only had heartburn once since.. We will see what Tuesday brings and I will update you all.. Until then I hope you all have a good weekend.. Enjoy what heat is left.. Cause the snow will be coming soon..

Love you all

T

Getting Better

I am happy to report that my clinic visit went well.. Dr.Cahill is happy with what she is seeing.. Everyone is especially happy with my pft's.. DRUM ROLLS PLEASE!!..... 54% is what I am at right now.. yip yip!! I cant be happier with the results for this week.. I wonder what I will top out at.. I cant wait to see!! I kinda like to pft's now that I can do them.. They were the biggest thing that I dreaded before transplant.. They were real hard to do with no air to do them.. I walked out side today and I realized I could smell the cool rainy air.. Before I couldn't take a deep enough breath to smell things.. Being able to do small things like that just bring that much more life in to me.. I am so very thankful that I am given this opportunity to experience life as i used to know it when I was a little girl..

No Sleep...

So tonight I was so tired and I went to bed and feel right asleep.. Aw that is so nice I usually can go right to sleep to and not wake up till the next morning when my alarm goes off to take my pills.. Well not tonight, I woke up a few hours after falling asleep and now I feel wide awake.. I have only done this once before since transplant.. That is pretty good cause my best friend never slept after her transplant.. Nope not me you tell me to go to sleep and I can sleep on command.. LOL.. Not really but almost. So now I am listening to itunes and writing to you all..

I have had a fun weekend so far.. My aunt is here as you all have read in the last blog.. So I got a wii fitness.. I thought it would be a good way to keep active in the winter while i cant really go out in big crowd's yet cause of all the germs and sick people... I DO NOT want to get sick.. I stay extra precocious cause it seems like everyone is getting sick.. That's what stinks about this time of year.. Flu Flu Flu is all around.. Not in my house though.. Anyway back to the wii.. (i easily get side tracked, can you tell..LOL) If you have never tried the wii, I can tell you right now that it really does work you out.. My friend Jackie came over tonight and I pulled out the wii and we started to play.. I had her try out all the things on it, like the soccer ball that you have to hit with your head.. Oh man that is so funny.. She kicked my trash in the ski jump.. I bet she will be sore tomorrow... I hope not but that game will do it to you when you first play it.. My sister played the baseball one for 3 hours and the next day her arm was so sore.. It was funny!! Poor girl..
I recommend that you get a wii if you are bored in the winter.. You wont put it down, trust me!!
Ha ha we also watched Baby mama.. That is a funny movie.. Go see it you will laugh..
My blood sugars have been so good these last couple days.. Perfect!!But still no weight gain :( In fact I weighed yesterday and I lost a pound.. I hope its just water weight that I lost.. Cause everything else feels great.. Even my heartburn has not been an issue the last few days.. Well last night i had it a little for a few minutes.. But that is good compared to what it was getting to..

Well I think I am going to try to figure out how to add a song to my profile.. I hope they have the song I want.. So maybe you will be able to have a little entertainment while reading my stories..
Hope you all can have a great Sunday..
Maybe I will be able to go back to sleep when I am done..

Love T

Its Thursday and my mom went home.. My aunt Candy came up to stay for a while.. Its going to be a fun month while she is here.. Candy likes to bake so i will be gaining alot of weight while she is here.. whoop whoop!! Maybe I wont have to see about doing tube feeds at night.. LOL
Man it snowed yesterday a lot... We like on a hill so we got socked in with the low clouds and the snow.. We couldn't even see across the road at times.. I didn't make it up to rehab.. But I did go down to the gym and do my missed workout.. I hope I'm not in to much trouble with them at rehab.. I'm sure I wont be in to much trouble they are way nice up there..
As far as it goes with my health everything is good.. My blood drug levels came back good.. In fact they said that they were perfect and nothing needed to be changed.. That is good!! I have clinic on Monday.. So we will see how that goes.. Well I'm off to bed so you all have a great night or day..
Love always
T

Winter

We are already into November, can you believe it.. The new president has been elected.. Seriously where is the time going??
I still feel good.. yea!! I have clinic on Monday, I'm excited to see what my PFT's are after 2 weeks.. I hope they are in the 50's.. I have not seen that number in like 10 years.. That's a long time.. I wonder if my legs will remember how to run after so long.. f coarse I wont be running for a while.. I have to get my muscles bake up.. They are getting there a little more each week.. During my workout my O2 level was 94.. It keeps getting better each week as well.. My weight is the same.. I just cant seem to gain anymore weight.. Hmmmm.. I think I will ask about my night tube feeds.. Maybe I can start them up.. Eat while I sleep!! LOL..
well I'm going to bed.. Get to get up in the morning for rehab.. Its not to bad now that I can do it..

Love all
T

Clinic Visit 3

Today was another clinic day for me.. It went great.. My PFT"s are up to 48 now.. YEAH!!! The fluid is almost gone off my lungs, however I was wheezy this morning.. Its weird cause my O2 was higher today.. Dr. Cahill said that my lower bases sounded damn good.. I just love her!!
Dr. Pain also stoped in to say hi.. He is the one that gave me the broncoscopy's the whole time that was in the hospital.. He is a great guy too, they always made sure I was as comfortable as possible.. You are supposed to lay flat, well I couldn't lay flat cause I couldn't breathe in that position at the time.. So they always let me have a pillow with the head of the bead tilted up just a bit.. When ever someone tried to lay me flat I would start to panic..
Man tonight my heart burn is back.. Damn this hurts and it just wont go away.. I'm going to call Kelly or Tauna, whoever is working to see if I can take Mylanta, or something else.. My friend that had transplant they had her drink it from the bottle.. So I'm sure they will let me try it.. But I'm still asking before I do drink any..
Tomorrow I a get to go home for a min and pick up my sister.. She is out of school the rest of the week.. Do they ever go to school anymore.. I never had that many days off..
Well I'm going to go now so you all have a great week!!

Love all
T

Great Weekend!!

This was the first weekend that I have had FREE, with my new life.. My dad came down Friday after work and stayed till Monday.. We just hung out on Friday night, and watched some t.v.. Saturday we ate a huge breakfast (for my weight gain) that filled me up to the top.. It was so good.. Later that day we went to the gym down stairs and we biked a MILE.. Can you believe that I can actually do that now.. yehaa!! We took it easy the rest of the day, I don't want to over due it and pay the price of super sore muscles.. I did that already, it sucks.. Sunday we started the day off with another huge breakfast 100% protein to help me heal better.. We basically ate all day and went on a walk in the apartment building.. This building is huge.. Its on a hill so if you go down the the 1st floor you walk down the hall and all the sudden you will be on the 6th floor.. So Weird!!! I was so confused the first time that I walked that.. I was thinking that these pills really do have an affect, then my mom told me why we had changed levels.. I was relieved to know that I was not crazy and was not lost.. Sunday we just hung out and went on a small walk, I did stretches for the most part of my exercises.. I have to give myself some kind of break, right?..

Monday was another clinic day.. It went well.. I have gained 2 lbs.. Some3 of it is water though.. I did my PFT's and they went from 39 last week to 44 today.. Cool huh!! My x-ray showed that I still have some fluid on my lungs but there is not as much as there was last week.. My heart burn is still there, we changed some things around.. Hopefully that will help.. My blood pressure is a little high.. Not quit in the red zone yet but we are keeping a real close eye on it..

Over all my weekend was super fun and I enjoyed it very much..

Sad for the Sox who lost there game last night.. But they put there heart into it so that's all good.. I'm not really sure who I want to win this years final..

I hope that I am keeping you all updated as you would have hoped.. Feel free to ask anything that I may have left out that yo want to know..

Have a great week

Love all

T

1st Clinic Day

Today was my first clinic day since my transplant.. It is a long day but I was always doing something so it went by fast.. We got there at 8:45 and went directly to the blood lab so I could get my drug levels drawn.. They were busy today so it took a little bit to get in.. Next we went down so I could do my breathing test (aka as PFT's) they were good.. The last ones I did before transplant my functions were at 16%.. Today they were 39%. They will continue to get better as I heal and build my strength back.. I have not had numbers like that for 5 years or so.. So I was pretty happy about that.. After those were completed I went over to rehab (exercise) and did some walking on the treadmill and some work on the new step.. I was worn out by the end of the session due to sore muscles I have from walking the day before.. My apartment has a workout room that my mom and I go to.. So anyway after my workout I went up and did my chest x-ray.. Then finally made it to clinic.. Everything went smooth.. My x-ray showed that I still have fluid on the right upper lung, which makes me wheezy and my chest will vibrate if I take a deep breath.. That will go away with time and exercise.. Dr. Cahill wants me to eat more.. She says eat meat meat meat.. So that's what I am going to do.. My diet is meat meat meat.. My mom and I got our flu shots.. Mine didn't even hurt.. My mom was a whiny little butt.. She is still whining about it.. Waa Waa Waa I tell her.. I like to tease her for it though.. ha ha ha!!

We got home and ate lunch and then I took a nap.. That was pretty much our whole days events..

Home!!

I am finally home after a month of being in lockup.. It feels so nice to be home and I can do what ever I want when I want.. My mom came up to the hospital this morning to get me.. However we didn't leave till about 4.. I got my feeding tube pulled out.. I told the nurse that I wanted yo do it and she was shocked that I knew how.. Well after 10 years of doing it I told her that I was pro.. We just laughed.. Then I get my pic line pulled out.. That felt nice too.. After having tape on your skin for a while it gets itchy.. The nurses are all scared to take the tape off cause they think that it is going to hurt but its the opposite it feels good..

Kelly the transplant coordinator came in and went over the red book (book all about transplant info) and pills.. I love the whole transplant team they are so great.. After Kelly left Crystal the pharmacist came in and gave me all my meds.. We went over them all and the side affects and everything else that involves pills.. Holy crap are there a lot of pills, but i know that i am going to be faithful at taking them so I am not worried a bit.. My mom is a big part of it too she goes over them with me, so at the same time she is learning them too.. Its like going back to school.. lol

I finally got to see my apartment it is so nice I love it.. It cozy and warm.. My mom and aunt picked it out last week, so it was kinda a rush rush thing. We are on the 4th floor so we get a good view of the capital building.. Its pretty at night..

Well I'm getting tired so I am going to go to bed.. Wright to you all tomorrow..


Love T

Last Night In Lockup..

Yes I am still of the O2!! This is so exciting for me.. I have moved to another room.. I am now in the cardiac unit.. The apparently had overfill on critical patients and I was the most stable one so it was me they chose to move.. That's okay though.. This room is a nice room.. Plus I go home tomorrow.. When I was moving down here I was taken off all the monitors for my heart and O2 level.. Their machine was hooked up to the wall so I couldnt get up and move around.. Well down here the stuff is portable.. Its real cool and very convenient.. I don't have to call anyone in every time I have to go to the bathroom or change a movie in the dvd player..

Its real weird some parts of my chest and back are numb but it still itches.. It sucks..

My mom is going to be here early in the morning to meet with the pharmacist and all that kind of stuff.. I hope to get out of here at a decent time.. I cant wait to see my apartment.. My mom and aunt picked it out last week and moved everything in.. My mom will be staying with me for a month then my aunt will come the next month.. They will switch off so they don't get so burned out.. My dad will also come down for a few days at a time..

LOL I am watching the Gremlins.. Do you remember that movie.. Its an oldie..

Well I better go and finish the movie and go to sleep.. I have a big day tomorrow and I need to feel good so I can for sure go home..

Thanks for all your support and prayers.. Love all of you!!

On My Own

About to get my Arterial line pulled.. ICK

Look Look no oxygen!!!!

First time getting out of bed

First time in the chair

I am breathing without o2.. I have been this whole day.. t is so so soooo coooool. Here are some more pics of my new life.. They are moving me to a different unit here in the 5th floor.. I not sure where though or what unit it is.. Can I just tell you how good I feel right now.. Oh by the way I am watching it snow.. yes you read that right.. SNOW!!!!

Pic's of Transplant

In SICU

All My IV Meds

Me and my Dad MICU

Grams And I in MICU

Jennalyn, Patti, Jodi visiting me in SICU

October 12

Hello friends it's me Tanya.. Yes I am finally writing in my own blog again.. Man I have really made progress once I got the vent extabated.. I have been walking laps around the unit, without stopping or being short of breath.. I'm still sore so I cant take a true deep breath yet.. I kinda feel top heavy with these lungs from a 6 foot man..

Sorry this has been a delay at getting this posted. I went to post it and the connection that I had booted me off so I lost all the work that I did.. . I t made me mad so I just shut the computer and went on dong what ever I was doing I don't remember.. LOL I don't remember alot..

Well I have got rid of all my tubes except for my pic line in my arm and my feeding tube.. My feeding tube will be coming out sometime today.. I am even off my O2 and I am dong just fine.. My O2 reading is 94 on room air.. Damn how long has it been since my old lungs were that healthy.. HHMMM a Very LONG time ago..

I am able to do most things by myself now.. I have a hard time bending over though so it will take some time for that to come back.. I have taken 2 showers and they feel so good.. I cant wait to go home and take a real shower.. AAWWW!!

I had a bronchoscopy the other day and I actually watched it.. They are so cool to look at, it is very fascinating.. Dr Cahill explained everything we were looking at.. She is so good to her patients.. She has been there for every bronch that I have had.. I feel so safe having her as a Dr..

My dad and I drank a Pepsi.. My first Pepsi since I have been extabated (taken off vent) It tasted so good.. I toasted a prayer to my buddy Will.. I know that he likes Pepsi and would love to drink one right now.. Will has moved to a center up in Idaho.. He is much closer to his family and friends.. I know that this will do him good..

October 5,2008

Friday the 3rd she got rid of her vent tube. that day they cleaned her up and wanted her to just state in bed and breathe. Saturday she walked all around the nurses station. Made the loop. She did not get winded, did't have to stop at all. Sunday the put a pic in and removed the christmas tree as they call it.



Its a great day. Today they took out what they called the Christmas tree. That is a long 10 inch tube that has multiple ports they use to give medication. That tube is put into the neck and goes to the heart. Thank the Lord that's gone. Friday she was taken off the vent and since then she has really improved. Tanya received her first real food today and she can finally drink what ever she wants. She may be going home next week. Thanks for all your prayers and good thoughts. Tanya will soon be writing to update her progress. This has been quite a journey.

October 2,2008

Good news today, Tanya has been improving ! She is walking the hall almost everyday. She has been breathing on her own for an hour or so at a time. We have been exercising her leg and arms in bed, trying to get them stronger. Today the last drain tube came out and at this very minute the staples are coming out. That will feel good. Tomarrow they plan on taking the vent tube out. We hope they do not have to put it back. She has been sleeping very well except for last night. She was sleepy today or they woud have taken the vent today. They want her well rested because it takes so much energy to breathe on her own. Thanks to all her many friends and well wishers. Thanks for all your positive energy and most of all prayers. She is truly blessed.

September 30, 2008

Hi everyone. Today is a sleepy day. Tanya is not feeling very good and is very tired. Dr. Cahill . has been in this morning and she wants Tanya to be sitting in chair more and just stand by the side of bed but the nurse Jules just came in and wants her to walk. So we will see how she does. Sheisn't a good morning person anyway . Yesterday they did another bronc and found less mucus then before, but very thick. Thick enough so she would not be able to cough it up had she been healthy also found a fugus growing. Now to find another antibiotic to take care of that. More later

Monday September 29,2008

Somemore update on yesterday. The afternoon was quite busy. First they did a bronc. That is where the put a camera with sucton down her vent. to sucton out all the mucus created by the new lungs when they are starting to work. For those of you who are not familiar with the vent it is a tube that goes down your thoat to the lung and pumps oxygen . Tanya says it doesn't hurt but is very uncomfortable because it restricts the oxygen flow. Very stressful. But they do give her medication to calm her. She walk yesterday, down to the nurses station. She sat in the chair for about and hour after. She was very tired and slept very well last night.. Now for today the 29th She started her day walking. She went to the end of the nurses station and back today. That was very good.

September 28

Today I am happy to report that Tanya is doing much better. Yesterday she was sitting up in a chair for about 4 hours her color is good and she feels stronger. she still has the vent in we are hoping maybe Monday that will come out. But with all this she has a sparkle in her eye. I think she is thinking of all the things she can do after this. Thanks to everyone for their support and all of the prayers. They are helping.

Tanya has taken a step back. She was given blood today and back on the ventilator. They did drain liquid from lungs. Not a good day. Dont forget prayers.

September 25, 2008

Tanya has been doing really well. She has been sitting up for a couple hours a day, she has walked, the vent and drain tubes came out Tuesday 9/23 and did well until yesterday 9/24 when one of her bottom lungs collapsed. She is now on a by-pap machine. Have not talked to Drs yet. She tried to walk last night from her bed to the door but had to sit 3 times. Not good. She is a tough little gal, so I'm sure she will be up and going soon. I'm going to fly to SLC tomarrow so I will have first hand info.

3rd day

Tanya had a rough night, she is a little down today. She will not be taken of ventilator today. They want to see how her lungs are doing first. They do that by putting a small camera down the ventilator tube. She has been taken of some of the medications. They are having a little trouble regulating her blood pressure but we are told that is normal because the body is fighting against the tube for the ventilator and the tremendous shock to her little body.

New Lungs

Hi I'm Tanya's aunt and I will be posting until she is able. My name is Kerry and I am happy to let you know Tanya has a new pair of lungs. Happened Monday the 15 of Sept. She went into surgery at about 6:30am and they were finished about 3:30pm. She is doing well so far. I will keep you updated as I get information. They will already start turning down the ventilator today, will see how she does. She is a very determined young lady. But we ask for prayers.

A Dog's Purpose

A Dog's Purpose (from a 6-year-old) Being a veterinarian, I had been called to examine a ten-year-old Irish Wolfhound named Belker. The dog's owners, Ron, his wife, Lisa, and their little boy, Shane, were all very attached to Belker, and they were hoping for a miracle.

I examined Belker and found he was dying of cancer. I told the family we couldn't do anything for Belker, and offered to perform the euthanasia procedure for the old dog in their home.

As we made arrangements, Ron and Lisa told me they thought it would be good for six-year-old Shane to observe the procedure. They felt as though Shane might learn something from the experience.

The next day, I felt the familiar catch in my throat as Belker's family surrounded him. Shane seemed so calm, petting the old dog for the last time, that I wondered if he understood what was going on.

Within a few minutes, Belker slipped peacefully away.

The little boy seemed to accept Belker's transition without any difficulty or confusion. We sat together for a while after Belker's death, wondering aloud about the sad fact that animal lives are shorter than human lives. Shane, who had been listening quietly, piped up, 'I know why.' Startled, we all turned to him. What came out of his mouth next stunned me. I'd never heard a more comforting explanation.

He said, 'People are born so that they can learn how to live a good life -- like loving everybody all the time and being nice, right?' The six-year-old continued, 'Well, dogs already know how to do that, so they don't have to stay as long.'

Live simply...Love generously...Care deeply...Speak kindly

Remember, if a dog was the teacher you would learn things like:

When loved ones come home, always run to greet them.

Never pass up the opportunity to go for a joyride.

Allow the experience of fresh air and the wind in your face to be pure ecstasy.

Take naps.

Stretch before rising.

Run, romp, and play daily.

Thrive on attention and let people touch you.

Avoid biting when a simple growl will do.

On warm days, stop to lie on your back on the grass.

On hot days, drink lots of water and lie under a shady tree.

When you're happy, dance around and wag your entire body.

Delight in the simple joy of a long walk.Eat with gusto and enthusiasm.

Stop when you have had enough.

Be loyal.

Never pretend to be something you're not.

If what you want lies buried, dig until you find it.

When someone is having a bad day, be silent, sit close by and nuzzle them gently.

Pic's from my fundraiser..

Mom & Brook

Some of my friends supporting my fundraiser (Lanea (CF), George, Sarah (CF), Trent, Amber, Lane inside arena, Grama behind Lane, Rae, Denise)..

Some of the prizes

My buckles and statue that were won by contestants

Raffle poster

Raffle table

More prizes

Sponsors are going to be posted as soon as I get all the names.. I don't want to leave anyone out..

Success for my Fundraiser!!

Well our CF fundraiser was a success.. We raised $2800 that will go directly to the foundation to help find that cure.. We had a turn out of 33 Senior barrel racers and 22 Junior barrel racers.. They all had a great time.. Although I was unable to be there I was on the phone a few times with family to hear what was going on.. My Friends Mandy, her husband video taped it so I could see what when on.. We had real great prises.. The buckles were beautiful.. The statues were real pretty too... I will post pics of some things when my mom comes down later today.. I hope she remembered the camera.. Well I just wanted to update you all, and I will get back later tonight with more.. I have to go get ready for the family to come..

September

Well it is already the 2nd of September already.. Labor Day weekend is over.. I hope everyone had a good one.. I had a relaxing Friday and just chilled, Sat I thought I was feeling good then as the day went on I started to feel more crappy by that night I was not doing anything cause I was so short of breath.. I was supposed to go to my friends birthday party but there was no going due to how I was feeling.. I tried to go but my body just simply said NO. Sunday I felt like dirt most of the day, I was glad that my Grama and Dad came down though.. They brought me some goodies.. Oh I live to get goodies.. Grams brought me some more books to read... I better get reading them so the next time they come down I can exchange for some new ones to read..
It's now Monday night/Tue morning. I was pretty good today. I was able to make it to the dog park and do a few thing around the house.. Lets hope that tomorrow will be the same..
We had a real nice rain storm yesterday and last night, so the air is nice and clean right now.. The thunder was crashing all around.. I love thunder!! I love lightning too, just not when it starts fires or hit the house..
My friend Will needs some extra prayers today.. So if you will send your thoughts and prayers his was as well. Much will be appreciated..
Thanks to you all..

A Week Free..

I have been out of the hospital for a week now... I still fell alright. I started a study on Monday with a nebulized inhaler.. Its called aztreonam.. It is something that I will nebulize 3 times a day and it takes 2-3 min to fully nebulize.. It has its own nebulizing machine called an e-flow.. So far I really like everything about it.. I hope that it will keep me out of the hospital longer..

We were able to make it to the dog park today for a little bit.. It was nice to get out somewhere besides the hospital.. Ziggy is happy now too..

Next weekend is my Cystic fibrosis Fundraiser.. My great friend Mandy and her Sister Megan is putting on Barrel Racing Jackpot.. All the proceeds go directly to the CF foundation in hopes that they will find a cure.. We will present the money at Taste of Salt Lake.. Which is a silent action to raise money for CF.. I know we will do real good.. I cant wait to post the results of this event..

First Call @ 4:55

It has almost been a month since I have wrote anything in this here blog.. A month already, wow.. Time flies, yet at the same time it is just creeping along.. It creeps only for the fact I think everyday that my life will start a new golden road.. I cant help but think of that day every time I get up to do anything and I have to focus everything on getting my next breath of air in.. So basically I am never not thinking of this day unless I am sleeping..
Well I was taking a nap today after rehab, I really was worn out today.. Unlike yesterday where I felt real good.. Good enough to clean my room and sit out with the dogs and play with them for the whole afternoon.. I just wish more days could be good more then the ones I struggle with.. I guess that's what make this whole journey so special, you truly are ready for that call to come in.. Well as I was saying I was taking my nap and my phone rang.. I was so tired I almost let it go to my voice mail.. But at the last second I picked it up to see Taunia's name on the ID.. So it just crossed my mind she was just making sure I was still doing good for the simple fact that it is a busy holiday for accidents.. So I was expecting her to just be doing a routine check up to make sure I was feeling good in case we were to get some lungs in the future..
I was right to a sense.. but the twist was she REALLY had LUNGS and that was my possible Donner. We Talked for a few min as she was asking me questions mainly about how i was feeling health wise.. And too see if I was taking any antibiotics.. So she asked when was the last time I had ate or drank anything, well my answerer was no not since 11.. So that was good and just to continue not to drink or eat. Until further notice which would be in 2 hours..
So I called everyone in my family and my few close friends to give them a heads up that this could be the night of new lungs..
So I waited by my phone for the longest 2 hours ever.. Well She ended up calling in hour and half telling me they were not good.. I feel sad for her having to have to call people and get them prepped for a possible new life, only to get a call back saying NO GO..
It has been 9 years on Labor day since my grandfather passed away so maybe he will send some down on that day..
Every emotion I had came out today.. I'm not quiting cause I know they will come..

Searving Joint Time..

I came into to joint on Monday morning.. I really needed to come in this time.. The weekend was a tough one, but I made it through without going to the ER.. I will do anything to avoid that rout.. It is hell.. I got the last room.. Dang that was lucky.. Just in time.. No where in the hospital except 2E knows how to take care of CF.. This is our unit!!

My Grams came down today and will stay till Sunday.. It's nice to have some one here all the time.. Since that is the only time we can spend together.. I can go outside more now that I have someone to take me out.. Good thing the hospital is on the hill, cause it sits above all the real crappy air.. Maybe tomorrow we will go sit on the Huntsman Hospital where there is a garden on the top of the roof.. take a lunch or something.. yup that's what we are going to do..

My lungs still are filled with allot of junk so I cant get around to good without getting real real winded.. They are just doing the regular meds while I am in.. In a week I will be starting a new drug (Aztreonam) its in the phase 3 study.. So a bunch of my Cf family is already on it or getting on it soon.. They are all doing great.. So hopefully this can make me live more comfortably while I wait for my lungs.. I am a few weeks of being at 7 months..

Have a great day to all who read this!!

****Prayers go out to the super hero Will****

40 Great Things!!!

1. Take a 10-30 minute walk every day. And while you walk, Smile. It is the ultimate anti-depressant.

2. Sit in silence for at least 10 minutes each day. Buy a lock if you have to.

3. Buy a DVR and tape your late night shows and get more sleep.

4. When you wake up in the morning complete the following statement,
'My purpose is to __________ today.'

5. Live with the 3 E's -- Energy, Enthusiasm, and Empathy.

6. Play more games and read more books than you did in 2007.

7. Make time to practice Meditation or prayer. They provide us with daily fuel for our busy lives.
8. Spend time with people over the age of 70 and under the age of 6. - Appreciate their genuine nature, strength, and innocence. For real!

9. Dream more while you are awake.

10. Eat more foods that grow on trees and plants and eat less food that is manufactured in plants.

11. Drink green tea and plenty of water. Eat blueberries, wild Alaskan Salmon, broccoli, almonds & walnuts.

12. Try to make at least three people smile each day.

13. Clear clutter from your house, your car, your desk and let new and flowing energy into your life.

14. Don't waste your precious energy on gossip, issues of the past, negative thoughts or things you cannot control. Instead invest your energy in the positive present moment.

15. Realize that life is a school and you are here to learn. Problems are simply part of the curriculum that appear and fade away like algebra class but the lessons you learn will last a lifetime.

16. Eat breakfast like a king, lunch like a prince and dinner like a college kid.

17. Smile and laugh more. It will keep the energy vampires away.

18. Life isn't fair, but it's still good.

19. Life is too short to waste time hating anyone.

20. Don't take yourself so seriously. No one else does.

21. You don't have to win every argument. Agree to disagree.

22. Make peace with your past so it won't spoil the present.

23. Don't compare your life to others'. You have no idea what their journey is all about.

24. No one is in charge of your happiness except you.

25. Frame every so-called disaster with these words: 'In five years, will this matter?'

26. Forgive everyone for everything.

27. What other people think of you is none of your business.

28. Nature heals everything.

29. However good or bad a situation is it will change.

30. Your job won't take care of you when you are sick. Your friends will. Stay in touch

31. Get rid of anything that isn't useful, beautiful or joyful.

32. Envy is a waste of time. You already have all you need.

33. The best is yet to come.

34. No matter how you feel, get up, dress up and show up.

35. Do the right thing!

36. Call your family often. (Or email them to death!!!) Hey I'm thinking of ya!

37. Each night before you go to bed complete the following statements: I am thankful for __________.
Today I accomplished _________.

38. Remember that you are too blessed to be stressed.

39. Enjoy the ride. Remember this is not Disney World and you certainly don't want a fast pass. You only have one ride through life so make the most of it and enjoy the ride.

40. May your troubles be less, May your blessings be more, May nothing but Happiness come through your door!

week half over

So the weather is cooling down a smidgen.. At least at night it is pleasant to be out.. Best of all we are back on Green air days.. Looks like it will be like that for the whole weekend.. That is nice than I can go out side and not be so worried of the affects is going to give me later that night.. I wish it would rain, it was real humid hear today.. I was going to send my car through the car wash but then i thought it just might rain.. So my car is still dirty with no rain.. I'm going to wash it tomorrow then it will rain, right??

I finally got my oxygen guy straightened out.. I don't know where they find these people to work for them but its like talking to a brick wall most of the time.. Then they just do what they want to anyway.. I really miss my O2 guy Jon in up home he would make sure everything was always in order.. Nope not here they come to fill your tanks when they feel the need to come, even though they know I am in the hospital for a couple of weeks.. they will come everyday and leave their " sorry we missed you" note.. Duh I'm not here don't you remember me telling you, plus I called the office as well.. I was down to my tank that goes in my car well since I am on 6 liters that tank would only last me 1 day tops with what was left in it.. So I called the office and she told me that they could only come out the next day.. UUMM did I mention my tank is on empty... So she sent someone out later last night.. ell he told me he could only fill one tank.. And he tried to take my little tank away from me.. Its not their tank to take in the first place.. He was making me so mad.. I finally said well someone better be coming out tomorrow (now today) or its gonna get ugly.. So Today my regular delivery guy came and topped all the tanks off.. And is coming back tomorrow to do the same so I can get back on the normal Thursday schedule.. People can make things so difficult sometimes..

Ending on a good note, Ziggy and I found a good dog park today to go to.. We were there for a couple of hours.. He made alot of friends.. His new bestie is the Bull Mastiff.. Of coarse the biggest dog there.. But they got along great and wrestled for awhile.. He came home all tuckered out.. He ate dinner had his treats and went to bed.. We are going to make this at least an every other day trip if I feel good enough to do it every day then we sure will..

Hope everyone has a great day/night whenever you read this..

Sunday

My Dad & I
My Grams & I

Today has been a good day.. My Dad and Grams came down for the day.. We ate out on the grill and just hung out for the day.. Grams and I went to the store and got a few things.. My Dad had to fix some electric things on the house.. Got everything I needed to get done so the rest of the evening I will put all my stuff I got and lay in bed and watch some movies.. The air is still a little hazy so I still don't spend that much outside.. I stay in my room for the most part with my hepa filter on high.. It has to help a little, right??

Well I'm going to go get my things done so I can relax and catch up from the busy weekend.. I sure did ware me out...

Birthday!!!

Dang its been a bit since I have updated this.. So after 2 weeks in the hospital I just got home in time to spend my birthday with my family and friends out of the joint.. Last year I was in the joint so I was hoping this year would be a little different.. Glad it was!!.. Yesterday 7-11 (my actual b-day) my friends Ron, Amanda, and baby Brenden took me to dinner.. It was a good night..

Today we had a b-day celebration for myself and two of my friends that has a b-day this month as well.. We had a cook-out.. It was good!! I got this PINK computer bag.. Yeah now I can have something to carry my computer in instead if stuffing it in my suitcase.. Thanks Jackie!! Loves!! I got these really cool necklaces from my mom and sister, one is a symbol daughter and the other is a symbol for sister.. I got some really sweet summer clothes too.. I was glad about that cause ALL my summer clothes are missing form when I moved.. So I had no shorts, and now I do.. Good cause its hot..

My mom brought Ziggy down so he could stay with me again.. I'm not to sure how long I will be able to stay out this time.. I will do all I can to stay out, but we are having the crappy smoke from all The Cali fires.. It really raises hell with all of CF'ers and all with lung problems.. Stay inside friends...

$1 RIBS

Hey Everyone!
Come down to Famous Dave’s in West Jordan to support The Cystic Fibrosis Foundation.
Channel 2 will be holding their survivor casting auditions and ribs are only a dollar from noon to 4 p.m. All proceeds go to the Cystic Fibrosis Foundation so come down get some grub and watch the wacky auditions. Also, watch channel 2 from 6 to 8 a.m. where Matt Meese will be the spokesperson for CF!

Date: July 3rd 2008 (Next Thursday) Time: Noon to 4 p.m. Location: 7273 S. Plaza Center Dr. West Jordan, UT 84084 (Jordan Landing)

Rough Night

So I did not have such a great night.. to start things off my night feeds made my blood sugar spike to an un readable number.. So every hour all night they had to come in and re check blood and of coarse i would need insulin.. My legs were real achy and i just could not get comfortable, i was tossing and turning all night till i finally just quit trying this morning about 7.. I had a fever as well.. My white blood cell count was real high so all this is due to catching a virus somewhere.. I have been up all this time and HOPEFULLY I will be able to sleep tonight..

Day One..

So they decided after all that I need to stay for the 2 weeks.. I did some breathing tests today and they were a bit worse than yesterday so that is a sign of something starting in these lungs.. I do feel a bit worse then yesterday too.. So I think that it is a good thing that they have decided this.. I don't want to get bad bad bad.. So as for now we are on the road to a recovery.. Hopefully one that will lead to my new lungs!!

In Hospital..

I came into the hospital today due to coughing up blood again.. I packed for the usual two weeks, but when I got here they said they were only wanting to keep me in for 48 hours to watch for more blood.. If there is no more than I get to go home.. This is Weird to come in and only have to stay 2 days.. I have never in my life been admitted for less then 2 weeks.. They don't even have an IV started.. I was sorta thinking why cant I watch for this at home.. So for now I guess I will have to wait and see if anything else comes aboard..
Have a great day everyone..

Red Air Day..

This crappy air is catching up to me.. As well as all of my CF friends.. We all are on house arrest.. I spent the whole day in the house.. To be honest I slept most of the day.. I have my Hepa Air Filter on high to keep the air in my room as clean as possible..
Sunday is supposed to be green air day.. So Hopefully I can go outside for a little while.. My Dad and Grams is coming down for the day.. I have been craving the Training Table restaurant so I think we will go there for a bit to eat.. I must have their Famous Cheese Fries.. Yummy!!
It has been 5 months since I have been placed on the transplant list, so I am half way to the average point.. So you all know what that means my lungs are getting closer to getting here every day.. YEAH!!!!

Weekend With My Sister **Brook**

My sister came down this weekend to stay a few days with me.. Its nice to have her company in the house.. She went up to my pulmonary rehab with me today and then we came home and ate some lunch.. We were going to go and do some more things in town but it got to late and the next think we knew it was dinner time.. So we pigged out on some good food.. Then we thought we needed to go to Baskin Robins for dessert.. YUMMY!!!

Tomorrow we are going to go to Build-a-Bear to get her doggy some new shoes.. (Some girl broke the other pair she had)
And I think we are going to go find a dog park..

Everything is still going good and we are going to keep it that way for a while.. Right!!!

Half Way to Friday!!

The week is half over.. Yeah!! I still need to get my Dad something for fathers day.. Man that came upon me fast.. I always seem to get things last minute.. Oh well that's just how life is sometimes.. The more spontaneous the more excitement.. Right??

Ziggy got a bath and a haircut today.. He was not happy with me for a couple hours after.. But then he forgets that he is mad and wants to sit on my lap and have me to himself.. Silly dogs.. I had to even wash his collar it was real dirty after being up at the farm for a month.. Now it is back to its bright green color.. I will have to get a pic on here tomorrow of my handsome boy.. He still thinks he is tough and will growl at a twig in the way but he makes me smile and that's what matters to me.. LOL he is sleeping next to me and he is having a dream.. His lip is just a twitching away.. Its so funny when dogs dream..

Tomorrow I am meeting up with my mom and getting my something to drive while my car is being fixed.. I really miss my car.. Its kinds weird cause I really don't like to drive all that much, probably cause I am in the city now and my car is a standard.. Man what a pain that is on the freeway in CONSTRUCTION.. Go..Stop..Go..Stop...Okay that is enough workout for me.. How about you??

Before I forget to tell you the site that you can go look at some of my photo shoot session with my friend Jackie, go down to my link list and she is under Lil Jack.. You will see the photos under the post Tanya's Photos.. She did so great.. There are many more.. Really too many to post.. So those are some of her favorites.. I have not seen the rest yet.. I will real soon though.. I cant wait!!

Well I ma going to get to bed I am real tired and I have an active day tomorrow i need to build up some energy for..

To all have a great day..

A Week Out And Still Going Strong!!

I have been out of the hospital for a week and I still feel good.. That is a change for me, I usually feel like crap with in the first couple of days I get home.. I had a good weekend we had a BBQ and our friends showed up and after we ate we played American Idol.. Its a fun thing to play with a group even if you don't sing good and don't know the words it is still a good time.. My bestest friend Sarah even got to come.It was great to see her and actually sit down and talk to her face to face.. Its been way to long since we have been able to do that..
My Dad and Grams got to come down on Sunday so that was fun.. They brought my lil boy Ziggy down with them, so now he is back with me.. Yeah!!
Well tomorrow is pulmonary rehab so I am heading to bed to get my rest so I can have a good day tomorrow.. Hope you all have a good day!!

Rainy Day

I have been home for a day and I still feel good.. It has been a rainy day so it made me tired cause it looked all cold out.. I was just hoping to come home to some sunny weather.. O well it will be great this weekend..
I hope my car gets fixed by the weekend.. The whole brake system went out and caused a few more problems that i did not need at the moment.. But what can you do?? Just take care of it the best you can..
Hope you all don't get to sick of the chilly days, cause warm is right on the way again.. HOORRRAAYYYY!!!!!

***On My Way Home***

I am in the clear to go home!! Yea!! It is going to feel nice to be home after a month.. I am going to go home and play with the pups and eat good food.. Eat that food till I cant eat another bite.. Chad will be getting off in 30 min and he will be up to get me.. I'm sure this time I will stay out more than 24 hours..
Take care Harbison family.. I hope that you are out by the time I have to come back in..

Today could be the day!!

So I am awake and ready to do my PFT"S.. I will be doing them at 9:00.. Last night went well so I think I am in the positive side of going home.. Yea!! This time I know I am ready to go and be out for a few weeks.. New lungs is what i need to happen.. But like I said before I am willing to wait till Dr. Cahill gets back from Israel..
I will let you know later if i get to break parole and have a life outside of the joint..

Much Love and Hope

Maybe just Maybe...

After 4 weeks with the 24 hour break that I had they finally said I may get to go home tomorrow.. HHMM that sounds good to me.. Ha ha just in time for the crappy weather we are going to have.. But then they said its going to warm right up.. just in time for the BBQ weekend..
And my family will come down this weekend to bring my lil boy back down.. So we will see what they say on me going home tomorrow.. I hope that it is good news.. Well I'm off to bed so the next time i wright i will be telling you I AM HOME!! Lets hope anyway..
Hope you all had a good Monday..

June Has Arrived!!

Today was such a nice day for weather.. The sun was out and it was a bright day all around.. I even got out and got some Vit D.. Much needed..

I woke up to this loud knock at my door, while I was sleeping I rolled over to see who it was this time.. OMG OMG it was Jake.. He came down to surprise me.. And he did do a very good job at his surprise cause I had not a clue he was coming down.. Brightened the hell out of my day I tell you!! I was in the best mood I have been in for days.. Thanks Honey!! That's it, you must come more to see your Princess..
I just ended the day chilling watching TV and talking on the phone to family..

Memorial Day Weekend..

(I can never seem to get a clear picture, but i guess at least I get one)

This was a good weekend cause it was memorial day and everyone had it off.. So they came down to see me.. My dad came this morning and we went to eat breakfast downstairs.. I was kinda impressed on their food in the morning.. I got full and it tasted good.. wow!!

We came back to my room and just chatted for a while until it was time for him to go..

I took a little nap and the next thing i know my baby girl Daizy jumped on my bed.. It was so cute.. Ziggy came in right behind her and was very vocal.. he was growling but it's not a mean growl it's like a doggy talk that he does just to introduce himself.. It's funny nut annoying.. I want to kick him in the but sometimes.. Oh well what can you do..

I wanted to go out side and play with them but it was raining and cold, so we just stayed inside my room and played. Ordered pizza.. It was good, fettuccine chicken Alfredo with white sauce.. Yummy.. We just chilled after we ate and then it was time for them to go.. So my busy weekend calmed down.. I hate it when my company has to leave. I get so bored.. Hopefully I get to go home soon.. I will have a better idea tomorrow probably.. I do feel better all around, so we will see..